Table 4 Future modifications and refinements to EJDeR and study procedures

Acceptability and feasibility of EJDeR

Module content: A need for more focus on the cancer experience.

Intervention content further tailored to the population, e.g., the experience of being a parent of a child treated for cancer by including more cancer-related examples throughout the modules.

Appreciation of video content.

Addition of two video case vignettes, focusing on recovery

Psychoeducation: A need for more focus on PTSS, relationships, and the wider family.

Provision of psychoeducation and techniques to manage PTSS.

Provision of psychoeducation on relationships and parenting difficulties commonly experienced by parents of children treated for cancer.

Portal: The Portal lacked user-friendliness.

Development of a more user-friendly version of the Portal.

Involvement public contributors in designing and testing the new Portal.

Communication and support: More contact with the e-therapist wanted.

Provision of an additional follow-up support session via telephone or video-conferencing to parents.

Acceptability and feasibility of study procedures

Study information: Some parents did not fully understand that the study contained a self-help intervention.

Provision of extended discussions with potential participants before conducting eligibility interviews to ensure understanding of study information.

Involvement of public contributors in co-designing study information.

Questionnaires: Questionnaires were reported as too many and frequent.

Reduction of the number and frequency of questionnaires.